Progressive MS Health & Wellness Resource Guide

While multiple sclerosis (MS) is different for each individual, four disease patterns have been identified – clinically isolated syndrome (CIS – a first event of neurologic symptoms in the central nervous system that may or may not develop into MS), relapsing-remitting MS (RRMS), secondary progressive MS (SPMS), and primary progressive MS (PPMS). SPMS, which follows after RRMS for most people, is characterized by steady progression with or without relapses. Primary progressive MS is characterized by steady progression from onset, typically with few or no relapses.
The characteristics, treatment and management of progressive MS are different from RRMS. Medication options are limited for individuals with progressive MS. People with progressive MS and their healthcare providers are encouraged to focus on symptom management and wellness. Improvements in wellness are known to have a positive impact on overall health and disease progression. Modifiable health behaviors that can improve wellness may include changes to diet, smoking cessation, and an increase in physical activity and exercise, among others.
Information about how progressive MS is diagnosed and managed and the important role of overall health and wellness is available in a variety of articles, booklets, webpages, and videos from Can Do Multiple Sclerosis and the National MS Society:
INFORMATION ABOUT PROGRESSIVE MS
- Classifications of MS: https://www.nationalmssociety.org/What-is-MS/Types-of-MS
- When Relapsing-Remitting Becomes Secondary Progressive MS VIDEO
- Progressive MS and Major Changes: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures/Managing-Major-Changes
- Disease Changes and Transitions in MS: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/taking-charge-of-your-ms-transitions-a-solution-focused-approach
- Progressive MS Research: https://www.nationalmssociety.org/Research/Research-News-Progress/Progressive-MS-Research
- Progressive MS Research: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/webinar-research-updates
- Restoring What’s Been Lost: https://www.nationalmssociety.org/Research/Research-We-Fund/Restoring-What-s-Been-Lost
- Complementary and Alternative Medicine: https://www.nationalmssociety.org/Treating-MS/Complementary-Alternative-Medicines
- Stem Cells: https://www.nationalmssociety.org/Research/Research-News-Progress/Stem-Cells-in-MS
- National MS Society MS Navigator: 1-800-344-4867
WELLNESS: WEBPAGES, VIDEOS, BOOKLETS
- Overall Health and Wellness:
- Living Well with MS: https://www.nationalmssociety.org/Living-Well-With-MS
- Living Well and Staying Well: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures/Staying-Well
- Wellness Discussion Guide: https://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-Wellness-Discussion-Guide-for-ppl-wMS-and-HCPs.pdf
- Service Animals: www.cci.org
- Service Animals: https://freedomservicedogs.org
- Diet, Exercise & Healthy Behaviors:
- Diet/Exercise/Health Behaviors Overview: https://www.nationalmssociety.org/Living-Well-With-MS/Diet-Exercise-Healthy-Behaviors
- Fall Prevention and Management: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/the-ups-and-downs-of-fall-prevention
- Role of Rehabilitation in MS Management: https://www.nationalmssociety.org/Treating-MS/Rehabilitation
- Yoga: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/yoga
- Weight Management: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/weight-management-and-nutrition
- Adaptive Sports/Fitness: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/access-your-ms-community-fitness-recreation-adaptive-sports
- Adaptive Sports/Fitness: www.adaptivesportsusa.org
- Adaptive Sports/Fitness: https://www.disabledsportsusa.org/
- American Physical Therapy Association: www.apta.org
- Cooling Product Resource: www.polarproducts.com
- Cooling Product Resource: www.coolture.net
- Cooling Product Resource: www.glaciertex.com
- Online Exercise Classes: www.msforward.org
- Online Exercise Classes: www.msworkouts.com
- Emotional Well-Being:
- Resilience Video: Addressing the Challenges of MS: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Resilience-Addressing-The-Challenges-Of-MS#section-0
- Emotional Wellbeing Overview https://www.nationalmssociety.org/Living-Well-With-MS/Emotional-Well-Being
- Resilience Webinar https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/learning-to-be-resilient-in-the-world-of-ms
- Depression/Mood Changes Webinar https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/taking-charge-of-depression-and-mood-changes-in-ms
- Spiritual Well-Being: https://www.nationalmssociety.org/Living-Well-With-MS/Spiritual-Well-Being
- Cognitive Health: https://www.nationalmssociety.org/Living-Well-With-MS/Cognitive-Health
- Work, Home & Leisure:
- Work and Home Wellness Overview: https://www.nationalmssociety.org/Living-Well-With-MS/Work-and-Home
- Driving: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/driving
- Driving: https://www.mobilityworks.com/
- Employment, Legal & Financial Planning: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures/Employment-Issues
- Accessibility: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/accessibility
- Leaving the Workforce: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/knowing-how-to-navigate-leaving-the-workforce
- Reasonable Accommodations: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/negotiating-reasonable-accommodations
- Social Security Disability: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/the-new-ms-listing-for-social-security-learn-how-recent-changes-to-the-ms-criteria-will-impact-your-disability-claim
- Health Insurance Problems and Strategies: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/common-health-insurance-problems-in-multiple-sclerosis-solutions-resources-and-strategies
- Individual State Vocational Rehabilitation Agencies
- American Occupational Therapy Association: www.aota.org
- Relationships:
- Relationships Overview: https://www.nationalmssociety.org/Living-Well-With-MS/Relationships
- Intimacy: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/intimacy
- Caring for Self and Others: https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/the-sandwich-generation-caring-for-yourself-while-caring-for-others
- National MS Society brochures: https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Brochures